Brandon is a delightfully happy 7 year old boy from Dover Plains,NY. He loves spending time with family and friends, participating in sports, and playing with super hero action figures. He is always smiling and until recently appeared to be a normal healthy child, enjoying all of life's joys to the fullest. This was before the onset of the symptoms leading to Brandon's diagnosis of the devastating disease known as ALD (adrenoleukodystrophy).
This diagnosis came in August 2014, after Brandon began to show decline in his coordination and abilities to focus. ALD is a rare brain disorder that causes damage to the central nervous system by disrupting the growth or maintenance of the myelin sheath that surround the nerve cells that allow us to think and control our muscles. Brandon has the most devastating form of ALD, that which appears in childhood, where normal healthy boys suddenly begin to regress. The damage caused by this disease is progressive, irreversible, and life threatening.
